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PKU societies:
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Europe, ESPKU
The Netherlands NPKUV (also in English)
Belgium (English and French)
Great Britain, NSPKU
Germany, DIG-PKU (German)
Society Duesseldorf (German)
Switserland, CHIP (German)
Switserland (French)
Austria, OEGAST
Italy, APMMC (Italian)
Spain (Spanish)
Denmark (Danish)
Norway (Norwegian)
Sweden (English)
Poland (Polish)
Kroatia
Tsjechoslovakia (Tsjech)
Mid-Atlantic Connection, MACPAD
Wisconsin
Illinois
Michigan
Florida
Texas
Northern Texas
Turkey (Turkish)
Canadian Children's PKU Network
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Order diet products:
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Products of ENER-G can be ordered online
Diet products of different brands can be ordered at
Liv 'n Well
Specialty Food Shop
Huber is a German baker's shop specialised in
pastry and chocolate for PKU-patients. Offers many products for Christmas.
Hammermuhle
Butcher Metzger Schott offers low protein sausages.
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Diet information:
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Website of
Milupa with information on their PKU products (German)
Extensive list of PKU recepies by Joke Ladan (few in english)
USDA product database
Buy a PKU diet management computer (German)
Recipies of the PKU Clinic in Seattle
Recipies of the PKU organisation in New Mexico
OEGAST recipies (German)
Nice German website with recipies (German)
Recipies of the PKU society of Illinois
Complete SHS cookbook
Website of
Milupa with information on their PKU products (German)
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Support groups:
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PKU Worldlink, meet fellow PKU patients all over the world
CCPKUAD, a parents' support group in California
In search for "a PKU penpall" ?
PKU portal (German)
PKU-Forum (German)
PKUweb Discussion Forum (German)
Website for adults with PKU
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Hospital-sites:
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Children's
department of the hospital in Montreal (Canada)
University
of Minnesota
University
of Washington (PKU Clinic)
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Personal sites:
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PKU Exchange
Tracy from New York (she became an astronomer)
Stefan from Germany (German)
Vincent (3) und Katharina (5) (German)
The uncle of Elena made this informative website (German)
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Detailed information:
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Maternal PKU
Phenylase research, read about it in
PKU News
A
lecture in PKU by a teacher in Biology
Bio-chemistry and genetic information
Aspartame and the crusade against its use
A short explanation of PKU (German)
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Books and magazines:
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National PKU News (engels)
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